Ramifications of Research
Polymyalgia Rheumatica & Giant Cell Arteritis UK (PMRGCA-UK) (http://www.pmrgca.co.uk/content/home-page) is a registered charity established to meet the needs of people with these debilitating rheumatological conditions, supporting their friends, families and professionals.
PMRGC UK Surrey patient support group emerged as a consequence of a survey and an educational afternoon organized by the Rheumatology Department with the specific purpose to gather background information to set up a qualitative study on Polymyalgia Rheumatica. With membership over 60 strong, this group has been meeting every two months for the last 5 years, showing that there was a real need to support people with PMR and GCA.
Alternating informal and formal meetings (with a speaker) has maintained the keen interest of the members. The Research and Development team have continued to support the group and reaped the benefits of this relationship as many members have been willing to participate in a further piece of research into Giant Cell Arteritis.
One should never underestimate the importance of extra-curricular activities!